Perhaps we can share helpful information. FM is an awfully disabling condition... and the worst of it is that it is invisible... not sure you may have heard the saying' The invisible me that you can't see... is not the me that I want to be' .... good wishes to you...
Originally posted by sandylarsen:
Every now and then I become aware of a "miracle help" for one affliction or another. Not as good as a miracle *cure*, but still greatly welcomed. Good examples are: Brushing daily with Sensodyne to help prevent cold sores; Taking Ibuprofen for irritable bowel (not just diarrhea).
Recently my mother discovered a miracle help for fibromyalgia, and I think it may work for chronic fatigue syndrome as well. Here's the whole story:
I have had CFS for three years now. My mother has had fibromyalgia for 30 years. And so I have found it interesting that some researchers believe there to be a link between the two. I never understood why they would think this, because it seems that the symptoms are so different. My mother's primary symptom has always been extreme muscle pain.
A few months back, my mother stumbled across a fibromyalgia program being offered by a local pain specialist. She went on the program, and amazingly her pain totally disappeared! She and I started talking a lot about it, and in the course of our discussions I discovered that my mom's symptoms also include extreme fatigue and many other CFS type symptoms. Then I realized why researchers think that there is a link. I also found out that my (now deceased) grandmother had suffered from the same symptoms that I have. So, now I'm starting to think there is a genetic factor involved.
Now, here's the really interesting part: Not only did my mom's pain go away, but so did all her other CFS type symptoms. All of them! She no longer feels fatigue. She sleeps well and wakes up refreshed. She's been on the program for a few months now and it's still working.
I have decided to see her doctor to see if the program might help me.
I don't want to give out the doctor's name, as I fear his program might be considered controversial. I don't want to spoil a good thing. But I'll tell you what the program consists of: methadone (a pain killer) prozac (an antidepressent) imipramine (also an antidepressent)
I'm sorry that I don't know the dosages. I just know that the amount of methadone she takes is too small to account for her freedom from pain. And, of course, none of these seem to explain why she is now totally free of all CFS symptoms. (I should point out that my mother is never depressed. I don't know why the doctor uses the antidepressents.)
I think that perhaps the reason this regimen works has something to do with sleep patterns. I read once that some researchers beleive that CFS and fibro-myalgia symptoms come about as a result of the lack of "level 4" sleep. Healthy test subjects who were deprived of this level of sleep for several nights started having the same symptoms.