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  Husband has fibromyalgia.Need information

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Author Topic:   Husband has fibromyalgia.Need information
summer
Veteran
posted 03-13-99 11:50 AM     Click Here to See the Profile for summer   Click Here to Email summer     Edit/Delete Message
Hi, My husband has Fibromyalgia and it is
so hard to find information.I have found a
few websites but they seem to conflict with
each other. Does this affect your joints
and hands. Whenever he works alot it really
bothers him.Also, do you know if IBD is
associated with this. I have IBD but not
fibromyalgia but I think he has both.

IP:

SUSANR
Veteran
posted 03-13-99 06:33 PM     Click Here to See the Profile for SUSANR     Edit/Delete Message
Hi Summer,

There are a lot of books on Fibromyalgia and Chronic Fatique. What has pretty much helped me is that I went to a Naturopath doctor and took a lot of vitamins, he detoxed my body. It really helped me greatly. I also have IBS and a underactive thyroid. Did you husband have his thyroid checked? A underactive thyroid you will have the same symptoms as Fibromyaligia. If you are interested in the natural way of healing there is a really helpful web site: drweil.com. Post your problem on their boards and they will tell you what herbs and vitamins that will help your husband. After 1 1/2 of pain and fatigue - using the natural therapy I am able to workout in a gym for 1 hour per day which was a major accomplishment for me after being so sick. Doctors never gave me anything to help the symptoms of Fibromyalgia - I was told this was something I just had to live with. I highly recommend seeing a naturopath doctor to help your husband. Health Food stores/Yoga instructors would know of one closest to you. Best of luck.

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Rose
Veteran
posted 03-13-99 08:52 PM     Click Here to See the Profile for Rose   Click Here to Email Rose     Edit/Delete Message
Hi Summer,
Welcome!!
My husband is the fibro person in our family. One of his first symptoms was hand pain and swollen hands. They did tests for arthritus. Has your husband had a firm diagnosis with the other diseases ruled out?

His hands got worse and worse as other symptoms began to appear. He has high blood pressure and is on medication for it. The dr. decided that his meds might be contributing and changed them.. Indeed they were. It was not an over night cure, but they are much better and after a year don't seem to be getting worse like before.
One of the sights with a great deal of info. that someone on the ibs board recommended is Jim Roaches Fibromyalgia Page.

But yes, many of the ideas are in conflict. Our quandry on this board is: is cfs the same or realted to fms. How come sometimes yes, and sometimes no?

Come visit us again.
Rose

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Linda Dutton
Veteran
posted 03-18-99 06:06 PM     Click Here to See the Profile for Linda Dutton   Click Here to Email Linda Dutton     Edit/Delete Message
I thought Cronic Fatigue Syndrome (CFS) was caused by the Bars-Epstein virus. I have never heard that it was related to Fibromyalgia. However, I talked to an older woman in my community who told me she had been diagnosed with something call Polymyalgia and after a number of pain racked years it went completely away never to return! Maybe there is hope for us all (smile).

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Rose
Veteran
posted 03-18-99 10:26 PM     Click Here to See the Profile for Rose   Click Here to Email Rose     Edit/Delete Message
Linda,
That is also what I read last fall that most theroies linked epstein barr with cfs. Than what I began reading was that cfs and fibro were related. Now they seem to be seperating them out again..
Kate, epstein barr is the virus connected to mono. But some get it more than once and may have slightly different sypmtoms. A few years back it was thought that if mono reoccurred it was than epstein barr. These people were miserable and in pain many times for months to get better and than relapse. See a familiar pattern here. What I read last fall stated that they now beleived many that sufferd with what was classified the epstein barr virus were patients suffering from cfs. So the question is why then did they group fibro with cfs and then a few months later seem to be separting fibro from cfs as well as the mfs

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heykate
Veteran
posted 03-19-99 12:13 PM     Click Here to See the Profile for heykate   Click Here to Email heykate     Edit/Delete Message
Oh, Rose - you have asked the question of the day! That's interesting info on the Epstein Barr virus, though. I carry it as well. Do you remember me telling you that as time goes on, they will find out all sorts of things that shouldn't be --- are??? I'm betting that they'll *finally* discover a link between fibro, ibs, and cfs (as well as mfs). In fact, my friend who has multiple sclerosis read an interesting article linking ms to possibly fibro a while back!!! (I'm afraid I didn't get the name and she can't remember where she read it - drat!) I am convinced that the medical community - as it grows up and matures and begins to take us seriously - will be shocked when they discover the missing links! I'm fuming again, aren't I? But it makes me so mad that there is so little known about fibro-ibs-cfs-mfs (and probably others we don't know about yet) and yet the doctors and regular folks are so quick to criticize and dismiss our symptoms. Well, where else can I unload but to you guys about this!

Anyway, to get back to the subject - Linda - as Rose said - they are all over the board on these symptoms. Depending on which net page, or which book you read - you get a whole different take on these illnesses! That's what makes it so difficult to diagnose them.

IP:

Rose
Veteran
posted 03-19-99 05:12 PM     Click Here to See the Profile for Rose   Click Here to Email Rose     Edit/Delete Message
Kate,
I thought ibs was one of the symptoms of fibro.

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heykate
Veteran
posted 03-19-99 07:35 PM     Click Here to See the Profile for heykate   Click Here to Email heykate     Edit/Delete Message
Believe it or not, Rose, I've been places where they even separate THOSE two. I know. It's terribly confusing! (I'm SURE they are related - so there!)

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Burgundy
Newbie
posted 08-24-99 01:02 AM     Click Here to See the Profile for Burgundy     Edit/Delete Message
Hi Summer,

I have fibromyalgia, chronic fatigue,
rheumatiod arthritis and IBD. You can
read some valuable and potentially life
saving information about "Antibiotic
Therapy" at www.rheumatic.org
Go to "Frequently asked questions"...
and I "think" it's question #14 that
talks about FM. There is information
from Dr. Weg in New Jersey there.
They also have information on many
other doctors who do the "Anti-infective"
therapy with "certain" antibiotics.
I can say for myself that it has
helped me, but I still have a long
way to go. I don't know where you live
but many people travel to go to doctors
that do this type of treatment. There
also is Dr. Barry Beaty in Ft. Worth, TX.
phone # (817) 737-6464. Dr. Beaty
does "not" have his info posted on the
www.rheumatic.org site, but everything
that Dr. Weg does(YOU CAN PRINT DR.WEG'S
INFORMATION) Dr. Beaty does the same
treatments.

IP:

moldie
Veteran
posted 08-28-99 10:30 PM     Click Here to See the Profile for moldie     Edit/Delete Message
My hands and feet every morning when I get up, and my fingers are swollen. This goes away, however, with movement.

There are a lot of people who have come to the fibro meetings and do not have IBS.

Dr. Jacob Teitelbaum who has cfs and treats those with cfs, and fms has tried thyroid treatments with his patients successfully. His perameters are different, however, and thus his treatment is controversial with many Endocrinologists (like mine for instance). Teitelbaum also treats, (especially those with IBS symptoms) for Candida and Food allergies.

I am deathly afraid of taking antibiotics now, as I believe they caused my Candida/Food Allergy reaction in the first place, and I don't want to go back there after being successfully treated for them with an antifungal (Diflucan), and staying away from the foods identified that I am sensitive to.
I would like to try the natural Amour Thyroid, low dose, temporary treatment to stimulate the Thyroid, as I would think that would increase my stamina. I would think, however, it is not without risk and one should be monitored by a phyisician.


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[This message has been edited by moldie (edited 08-28-99).]

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