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Author Topic:   They just never know do they?? Women thing!
Homebound
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Posts: 394
Registered: May 99

posted 02-28-2000 02:50 AM     Click Here to See the Profile for Homebound   Click Here to Email Homebound     Edit/Delete Message   Reply w/Quote
Doctors that is. Seems like I always have something that they can't diagnose. If some of you remember I thought I had been suffering with a yeast infection this past month and a half. Or some sort of bacterial problem. I've been to two doctors now, one an urgent care doctor, and the other my OB/GYN.

I've tried two tubes of monostat, over the phone before I saw my OB she prescribed me Diflucan (a pill for a yeast infection), and then her partner prescribed me a sulfa cream late one evening since I was suffering and couldn't get in to anyone. None of this has really helped. So I went in to see her and she ran a bunch of tests. And to what suprise, she found NOTHING!! I almost asked her if I was in the right place and not actually seeing her for IBS? LOL

So what is causing this burning pain? Who knows. It's almost like a bladder infection, but no bacteria so it's not. And all other tests are negative. It's a burning after I urinate, and can last for a few hours later. Or just kinda burn during the day. So now if I'm not suffering with IBS, I'm suffering with this. I've had this problem alot during my life, but not usually this bad. I belive alot refer it to irritable bladder or IC. I don't know how to lesson the burning. I've bought sensitive skin soaps, tried all those meds. I don't know what else to do! The doc told me to put some A&D down there. I may try that next. For once I just wish I could go to the doctor and for them to say "AH yes you have this, here this should clear it up in a jiffy!" Awww only to dream. If you got this far thanks so much!

Jennifer

HJ
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Posts: 87
Registered: Oct 1999

posted 02-28-2000 10:37 AM     Click Here to See the Profile for HJ   Click Here to Email HJ     Edit/Delete Message   Reply w/Quote
Hi Jennifer,

Sounds like you are very frustrated and I can't blame you. I have had a continuous itching and sometimes burning down there for a good part of 15 years. No Dr has been able to figure out what is wrong. I have had the tests, even a biopsy and they find nothing. My symptons seem to work with my hormones, so sometimes it is worse than others. It seems especially bad right before and right after my period. Please let me know if you do find an answer as it could help me too.

Question for you, what is A&D? I am having a hard time putting words to those letters.

Regards,
HJ

LALAS
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Posts: 27
Registered: Dec 1999

posted 02-28-2000 01:42 PM     Click Here to See the Profile for LALAS     Edit/Delete Message   Reply w/Quote
I cannot believe I just found this post. Hon, I am a 23 year old female, and have had the same problem for about two years. Unfortuntatel, mine has mostly been related to intercourse. Very same thing, lots of perscriptions for diflucan sporanox, but no yeast was found. Ironically, Thursday, I had these symptoms, and ran immediately to the free clinic by my house. I had seen him once before complaining of the same symptoms. Anyway, I was diagnosed with a condition called Vestibulitis. Not many doctors are aware of this condition, but they should be (IDIOTS) This occurs mostly in white women, and can start at any time throughout your life. I have an appointment Friday with a Vestibulitis specialist, but the doc who diagnosed me said there is no cure, and not too many treatments. He mentioned surgery which I gawked at!!!! This is a condition in which many people also suffer from IBS and Fibromyalgia and other 'fake' illnesses. Please make an apointment with a specialist and get yourself checked out. Dont let these damn doctors make you feel worthless or make you feel as though you are a hypochondriac. Check out these sites. Good luck!
LALAS
http://www.vh.org/Patients/IHB/ObGyn/VulvarVestibulitis.html
http://www.tldp.com/issue/166/166vulvo.htm
http://www.med.umich.edu/fp/reed/burning.html
http://www.vulvarpainfoundation.org/effective_treatment.htm
http://www.nva.org/nvaFAQ.htm
http://womenshealth.about.com/health/womenshealth/msubvulvo.htm


silver
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Posts: 637
Registered: Dec 98

posted 02-28-2000 04:17 PM     Click Here to See the Profile for silver   Click Here to Email silver     Edit/Delete Message   Reply w/Quote
LALAS, I was diagnosed with vestibulitis 2 years ago and it has finally gone now, so there is hope. I was like you, went from doctor to doctor and tried, diflucan, monistat, flagyl and no yeast was ever found but the pain was unbearable!!!!
The only thing that really helped me was oatmeal bath every day. I did not use aveno because of the cost but I used regular oatmeal, I put about 2 cups in the food processor and blended it with a little water and poured right into the tub. It was a big mess but it WORKED. I also was given some cream to put up inside on the glands, and it burned at first but it really helped too. The cream was called "lidex" and I used it twice/day for 3 months, then stopped because it got better then I had to use it again after a few months. It took about a year and a half to clear it up but it worked. I still get symptoms when I get my period, the first couple days when the flow is heavy it really burns coming down but doesnt last (thank God!). Anyway, I just wanted to offer you and Homebound some hopes that the condition does get better, I was told that I might need interferon injections but I opted for the cream instead and waited it out, believe me I was in alot of pain when I first got this condition. Good luck, I know you will need it!

silver
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Posts: 637
Registered: Dec 98

posted 02-28-2000 04:18 PM     Click Here to See the Profile for silver   Click Here to Email silver     Edit/Delete Message   Reply w/Quote
LALAS, I was diagnosed with vestibulitis 2 years ago and it has finally gone now, so there is hope. I was like you, went from doctor to doctor and tried, diflucan, monistat, flagyl and no yeast was ever found but the pain was unbearable!!!!
The only thing that really helped me was oatmeal bath every day. I did not use aveno because of the cost but I used regular oatmeal, I put about 2 cups in the food processor and blended it with a little water and poured right into the tub. It was a big mess but it WORKED. I also was given some cream to put up inside on the glands, and it burned at first but it really helped too. The cream was called "lidex" and I used it twice/day for 3 months, then stopped because it got better then I had to use it again after a few months. It took about a year and a half to clear it up but it worked. I still get symptoms when I get my period, the first couple days when the flow is heavy it really burns coming down but doesnt last (thank God!). Anyway, I just wanted to offer you and Homebound some hopes that the condition does get better, I was told that I might need interferon injections but I opted for the cream instead and waited it out, believe me I was in alot of pain when I first got this condition. Good luck, I know you will need it!

Homebound
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Posts: 394
Registered: May 99

posted 02-28-2000 05:31 PM     Click Here to See the Profile for Homebound   Click Here to Email Homebound     Edit/Delete Message   Reply w/Quote
Wow, I'm just amazed with the great info I get here! Thanks so much everyone, you have no idea how apprieciative I am!!

HJ- A&D ointment is basically used for diaper rash. But alot of people use it for other things. I know someone told me recently they put it on tatoos to make it heal up faster. But I'm assuming since I'm having a burning pain, the doctor figured since this is good for burning of a diaper rash it would help. I wasn't too convienced on this but I just went to one of the sites LALAS posted and it had that on there as one way to help. So A&D here I come! LOL

LALAS- Thanks so much, those sites are very helpful. I've never heard of that problem before, but it really sounds like whats wrong with me. What specialist should I go and see? My OB/GYN is SUPPOSED to be a specialist but I don't think she had a clue what could be wrong with me. I still have more of those sites to look at so I'm gonna do that now. Thanks again! It's nice to know I'm not going batty! And I'm not alone!

Silver- I'll give the baths a try! At this point I'll try just about anything to releave the pain. It's just awful. Like I had said I've been having this off and on my whole life. It went away about 4 years ago, and I was doing great. And now it seems to be back. I also get it worse when my period is about to start, and a few days in to it. I'm glad to hear yours is under control. Horrible having a bunch of things that doctors don't know how to cure huh!

Jennifer

zigmissus
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Posts: 232
Registered: May 99

posted 02-29-2000 01:47 AM     Click Here to See the Profile for zigmissus     Edit/Delete Message   Reply w/Quote
I've had a similar condition on and off for 15 years. It started at the same time as my IBS. Dr. after dr. kept telling me, "I don't SEE anything" and dismissing my complaints. Finally, 3 years ago I talked a gyn into a biopsy. (Right before this, a dermatologist gave me the "I don't see anything" line, then suggested I see a shrink.) Anyway, the biopsy diagnosed an inflammatory condition called Lichen Simplex Chronicus. I, too, was given Lidex, and it helped over time. But over the last year, I've been having pain in the urethra that feels like a constant bladder infection, but no bacteria are present. I can't go back to the same gyn because I'm not with that HMO anymore. Two new gyns and two urologists seem baffled. I'm trying to learn to live with it. Ativan blocks the pain signals from the nerves and helps some, but I hate to take it every day and get addicted. As for A&D ointment, it does help, but it contains cod liver oil, which has a really embarrassing smell. I prefer zinc-based creams like Balmex. I will definitely check out the websites Lalas mentions. Another good one that is run by Dr. Glazer contains women's personal stories. It's at www.vulvodynia.com/guest.htm

jd44
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Posts: 119
Registered: Feb 2000

posted 02-29-2000 07:47 AM     Click Here to See the Profile for jd44     Edit/Delete Message   Reply w/Quote
My chronic yeast-infection-feeling wihtout yeast went away when I stopped eating any plants but greens and a little olive oil. So maybe in my case there were invisible yeast cousins at work looking for carbohydates to thrive on and make me miserable. Meat, meat, meat became my diet, 3-4 times a day. And the y infection went away and the fibromyalgia went away and much of the bloating + gut troubles went away for quite a while. Gut troubles returned but were somewhat different after a round of antibiotics for sinus infection. Now am trying to help that with Pepcid ac, and I have started adding small amount of starch, a piece of fruit, and couple ounces of milk per week etc. Am still new to attempts to expand the diet and feeling my way along.

Good luck to you all. It's the pits. And when you get over it, if you do, there's probably another horror waiting to grab you and drive you nuts all over again.

------------------
Was Dorothy Parker right--gas stinks?

LALAS
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Posts: 27
Registered: Dec 1999

posted 02-29-2000 02:53 PM     Click Here to See the Profile for LALAS     Edit/Delete Message   Reply w/Quote
Hey jd44,
thanks for the vote of confidence! Just because there is always some horror waiting for you doesnt mean the rest of us are going to suffer forever. I would like to have a positive attitude about this, regardless of how much agony many women have endured.
LALAS

zigmissus
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Posts: 232
Registered: May 99

posted 02-29-2000 11:19 PM     Click Here to See the Profile for zigmissus     Edit/Delete Message   Reply w/Quote
Just a correction--I was at the drug store today, and noticed that it's DESITAN, not A&D Ointment that has that dead fish smell. Oops, sorry!

jd44
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Posts: 119
Registered: Feb 2000

posted 03-01-2000 12:08 AM     Click Here to See the Profile for jd44     Edit/Delete Message   Reply w/Quote
Hi Lalas, I wish us all better experiences than I have had. And than we have had.

All times are ET (US)

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