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Author Topic:   Gall bladder and CCK again
danielwebb
Newbie

Posts: 2
Registered: Oct 1999

posted 10-03-1999 01:53 AM     Click Here to See the Profile for danielwebb   Click Here to Email danielwebb     Edit/Delete Message   Reply w/Quote
Well, I know the veterans have seen this before, but I have a few things to add. I have been sick for about 7 months with mostly nausea and fatigue. I have a persistent, but very mild ache in the liver/gall bladder area. I often feel better for 3-4 days, then tired 3-4 days. My stools also alternate between normal and pale yellow. I have been to 5 doctors now, and had many $1000s of tests done. Every one was normal, until last week. I had the CCK (but not HIDA) scan, and lo and behold, the result was like Charlie's: nothing. My gallbladder didn't contract at all. It even expanded a little. The strange thing is this: I never have attacks. Fatty food even seems to calm my stomach!
The doctor is confused, and I understand why: I have read all the current research on CCK, and this is a strange case indeed. I found this board because my problems are quickly being narrowed down to being called IBS.

Some points I would like to make, having read a lot of the old messages just now:
1. Ultrasound often doesn't see gallstones. In fact, gallstones are often only found when the gall bladder is removed!
2. CCK is no longer controversial, unless your doctor hasn't been keeping up with the times. 10 years ago the research results were indeed mixed. Now, it has been established that CCK is a useful test (someone previously posted a copy of one of the larger studies on it, but not the newest).
3. Many people here are accepting the diagnosis of IBS too quickly. I know from experience, that most doctors HATE to deal with people who have vague abdominal or fatigue symptoms. I was told by a gastroenterologist that my problem wasn't in my liver. The test I got this week shows that he was wrong, but the test wouldn't even have been done if I didn't see a different doctor. Here are some things to consider:
Giardia - if you haven't been tested for this, do it! It has been found that many people who were dianosed with chronic fatigue, actually had giardia! I didn't know it until I started doing the research, but in rare cases it can become chronic.
Parasites - this is a tough one. I still haven't ruled this out. Since each stool parasite test has 60% chance of finding them, even if you have them, it has to be done many times.
Food allergy or intolerance - I don't know much about IBS yet, but whatever is wrong with me seems to have made me lactose intolerant, and possibly sensitive to other things. I know of people second-hand have have ended many years of suffering by finding food allergies and intolerances.

Everyone has to decide when it is time to accept something as inevitible. For me it will be when I know more about medicine than my doctors.

danielwebb
Newbie

Posts: 2
Registered: Oct 1999

posted 10-03-1999 03:33 AM     Click Here to See the Profile for danielwebb   Click Here to Email danielwebb     Edit/Delete Message   Reply w/Quote
Another thing - I saw people talking about how it took 5 days or more to get the results of the CCK scan! Just watch the number on the ultrasound screen, it will probably give the volume of the gallbladder in cc, or cm^3 right on the screen. I knew the result before I even left the ultrasound room. Your doctor doesn't consider you very important if it takes 5 days to tell you the results of a CCK.

charlie
Veteran

Posts: 1428
Registered:

posted 10-03-1999 08:20 PM     Click Here to See the Profile for charlie   Click Here to Email charlie     Edit/Delete Message   Reply w/Quote
way to go
danielwebb
GOOD POST
charlie

Skeeter
Veteran

Posts: 13
Registered: Sep 1999

posted 10-04-1999 06:21 AM     Click Here to See the Profile for Skeeter   Click Here to Email Skeeter     Edit/Delete Message   Reply w/Quote
Daniel, just saw you post. I, too, have something weird going on with my gall bladder that I think may be related to IBS. Unfortunately I'm on my way to work in a minute and will be gone for a few days. Will try to find your post when I get back and tell you the story. It involves the gall bladder flush and my Docs. I think you'll like to hear about it. Left me wondering what they actually learned in med school.

Skeeter

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