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  IBS and bladder

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Author Topic:   IBS and bladder
Ripley
unregistered
posted 08-18-99 03:32 AM           Edit/Delete Message
I have severe IBS----but I also have a chronic bladder disease called Interstitial Cystitis which is chronic inflammation of the wall of the bladder. There are a variety of symptoms and degrees of severity to this disease which I could write a book about. Those of you who have bladder frequency, pressure, pain, etc., might want to consider the possibility of this condition. There have been studies done (which I have documentation for or the websites mentioned in a previous post can confirm) which determined that people with interstitial cystitis (IC) are 100 times more likely than the general population to have have intestinal disorders and diseases--IBS being one of the common conditions we share! They are searching for causes and cures, etc. I believe they are tied together with the auto-immune system disorders. To put my symptoms in a simple way: my bladder can't seem to stand urine being in it and violently throws a fit until it is gone----in the same way, my colon/intestines can't seem to stand anything being in them and violently throws a fit until it is gone. Of course, it's much more complicated and varies but you get the idea. However, in order to be diagnosed with IC you have to have a cystoscopy under general anestheisa. They fill your bladder with water, then empty it and look at the wall of the bladder which will usually look like a bomb went off in there. There is no urine test at this time for IC, although they are working on easier ways to diagnose it. SO getting diagnosed isn't easy but if you are suffering enough from the bladder symptoms, it is worth checking it out-----there are lots of things that "may" help you deal with the symptoms. Hope this helps.
Ripley

debidoo
Veteran
posted 08-18-99 11:56 PM     Click Here to See the Profile for debidoo     Edit/Delete Message
Ripley,

Have you read the book about IC called, "To Wake in Tears : Understanding Intersitial Cystitis" by Catherine M. Simone? If not, you can check it out at amazon.com at this address:

http://www.amazon.com/exec/obidos/ASIN/0966775007/n/qid%3D921881750/sr%3D2-1/002-2963797-5652006

Debbie

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charlie
Veteran
posted 08-19-99 08:54 AM     Click Here to See the Profile for charlie   Click Here to Email charlie     Edit/Delete Message


just want to help with that web address,just click on it
http://www.amazon.com/exec/obidos/ASIN/0966775007/n/qid%3D921881750/sr%3D2-1/002-2963797-5652006
charlie

autumnmist
Veteran
posted 08-19-99 03:51 PM     Click Here to See the Profile for autumnmist   Click Here to Email autumnmist     Edit/Delete Message
Ripley,
I too have problems with my bladder and when the IBS kicks..go does the bladder and vice-versa. IBS is also known as spastic colon and now they tell me I have a spastic bladder too. Fun. I have had a hysterectomy and since then everything has shifted and now my colon is far down by my bladder, which is trying to jump out of my vagina. Sure they can do surgery to correct the problem (the dropped bladder) but that won't help the spasms. They said I can have treatment for that. They insert some medication in your bladder and then keep it in place with a soppository the size of a birthday candle. You have to go every day for 1 week and it takes about an hour. So far I have declined..thank-you. And how come everyone else gets a anesthetic before a cystoscopy??? I have them every 3 to 6 months and I don't even get a tylenol!!! Perhaps I'm tougher than I think? Anyway, ask your Dr. about that treatment I described. Perhaps it will help. Also, I've had my bladder scrapped too. Not a good feeling, but they had to get rid of the cysts and scar tissue...again..not even a tylenol. Take care.
Autumn

------------------
Listen to the wind.....
and it shall set you free.

debidoo
Veteran
posted 08-19-99 08:06 PM     Click Here to See the Profile for debidoo     Edit/Delete Message
Hey Charlie - thanks for the help. I wonder why the hyperlinking won't work when I post a web address? It does it automatically on the other IBS board. Any suggestions?

Debbie

mcbec1
Veteran
posted 08-20-99 09:12 AM     Click Here to See the Profile for mcbec1   Click Here to Email mcbec1     Edit/Delete Message
About 14 years ago I suffered tremendously with bladder problems. I finally was lucky enough to find a great Urologist. Dr. James Balch (Prescription for Nutritional Healing author). He was Great!!! I was under his care for almost a year, started going every couple days, then every week, then every other week, etc...... but I finally got better. We had been trying to get pregnant, and after that year I was able to. After that I had my tubes tied, but they had so many problems with that, they were so scarred from all the bladder infections/problems. But, I'm better now, just occasional bladder spasms, infections. The IBS/crohn's has really thrown it for a loop tho, but when that happens, I have medicine for it. Bladder spasms can really suck!

[This message has been edited by mcbec1 (edited 08-20-99).]

[This message has been edited by mcbec1 (edited 08-20-99).]

zigmissus
Veteran
posted 08-20-99 12:42 PM     Click Here to See the Profile for zigmissus     Edit/Delete Message
mcbec1, what type of treatments did Dr. Balch give you? I'd never had irritable bladder along with my IBS until earlier this year when perimenopause kicked in. Autumnmist, do you take estrogen and does that help the bladder? Does the fun ever end?

Homebound
Veteran
posted 08-21-99 02:54 AM     Click Here to See the Profile for Homebound     Edit/Delete Message
OMG, I have had Interstitial Cystitis since I was born! I've been to millions of doctors since I was 2 years old, and none of them could tell my mom what was wrong with me. I finally found out about Interstitial Cystitis on my own, by doing research. By eliminating milk alot of my syptoms left. And now I have bladder problems only around my period (same with my IBS belive it or not!). I've always wondered if there was a tie between them. My mother had some bladder problems as a child but they left her when she became an adult. VERY interesting. I'd like to hear more about it if you have more information. You can email me at: balljjj@yahoo.com Thank you very much!

I also wanted to just say that people with IC, don't have bacteria in their urine. There is usually no infection, but you feel like you have a full blown one. I had alot of infections along the way too. But most of the time there was nothing to be found. I could never find a doctor that wanted to help me. Just like with IBS. So similar it's scary!

~Jennifer

[This message has been edited by Homebound (edited 08-21-99).]

autumnmist
Veteran
posted 08-21-99 01:14 PM     Click Here to See the Profile for autumnmist   Click Here to Email autumnmist     Edit/Delete Message
No I don't have to take estrogen because they left 2/3 of my right ovary in..and now I get cysts on that one. I'm soooo lucky.
I wonder if I'm beginning menopause though..hot flashes etc. And I agree with Homebound. Bladder infections are one thing and the cystitis is another. My Dr. (who I won't see any longer) kept traeting me for simple UTI's when there was NO bacteria!!!
There was a bucket of blood though so she figured that would help. Gee. And again the bladder problem doesn't help the IBS. Wonder what could go wrong next??? lol
Autumn

------------------
Listen to the wind.....
and it shall set you free.

mcbec1
Veteran
posted 08-23-99 10:40 AM     Click Here to See the Profile for mcbec1   Click Here to Email mcbec1     Edit/Delete Message
Ok, I'm not sure what he was treating me for as I don't remember a diagnosis of IC, but I do remember being labeled with chronic cycstist (sp). Dr. Balch would cathaterize my bladder (and I must say he was the most painless Urologist I have ever been to) and then he would dialate me. Then he would insert a liquid (I think he told me it was silver nitrate) and I couldn't relieve myself for at least an hour. I was under his care for almost a year, as I mentioned earlier, doing this every few days, then every week, and so on. He also altered my diet (that's why you might check out his book at the library). I don't know if he's practicing anymore since I moved away 13 years ago, but at that time he was in Greenfield, Ind.

Ziggy
Newbie
posted 08-23-99 06:24 PM     Click Here to See the Profile for Ziggy   Click Here to Email Ziggy     Edit/Delete Message
To everyone with IC. Boy what a surprise. I never expected to find anyone with IC on this chat board. I suffer from chronic C and I have also had IC for about 23 years now. I could also write a book on how devastating that disease is. I also have stomach problems. At time I think about which one is worse. I just don't know. I just pray I don't have all three bothering me at the same time. Everyone talks about taking magnesium for C. How much and what kind? If anyone out there wants to talk about IC I would be glad to help. My_critter@hotmail.com Thanks

Smile
Veteran
posted 08-26-99 10:15 AM     Click Here to See the Profile for Smile   Click Here to Email Smile     Edit/Delete Message
Hi
I am going to a Urologist, when I told my symptoms to the doctor, she said it may be IC. This doenst sound like fun. Anyway, what are the symptoms everone had? How did you get tested? Also my primary said she hopes that I don't have it because it is similar to IBS, the doctors don't know much about it. Don't know what causes, and dont know how to cure. Oh joy! What I wounder is, maybe I don't have colitis, maybe the apins were from IC? I just don't know, it is too confusing. One last note, I am very luck with my doctors. They are honest and upfront.

Simon Woo
Veteran
posted 08-27-99 10:12 PM     Click Here to See the Profile for Simon Woo   Click Here to Email Simon Woo     Edit/Delete Message
Can somebody tell me what you all mean by 'bladder problems'? For me I've experienced increased frequency and urgency. My doctor says IBS can cause bladder problems too, and left it at that... BTW, I've been checked for infection and kidney and gallstones etc but nothing was found.

<< SiMoN >>

[This message has been edited by Simon Woo (edited 08-30-99).]

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