NavBar
  The Parkview Publishing Bulletin Board
  Irritable Bowel Syndrome (IBS) Discussion
  Desperate for some advice

Post New Topic  Post A Reply
profile | register | preferences | faq | search

UBBFriend: Email This Page to Someone! next newest topic | next oldest topic
Author Topic:   Desperate for some advice
Sunil
Newbie

Posts: 6
Registered: Mar 99

posted 03-18-1999 01:19 PM     Click Here to See the Profile for Sunil   Click Here to Email Sunil     Edit/Delete Message   Reply w/Quote
Hello all,
I am 24 years old and was diagnosed with IBS 3 months ago and am scared stiff. I have lost 25 pounds since this started and am starting to think that this is one battle that I cannot win. I stumbled upon this site
today and am praying that I can get some good
advice from somebody.
A little background. I have a high pressure travelling job as a sonsultant. I was working 12-14 hours a day including weekends for a couple of months away from home when I got a bout of diarrhea which sent me to the emergency room with dehyrdration. I got off that assignment and came home around 2 1/2 months ago and have still not recovered. I have a lot of gas, reduced appetite and need to use the restroom as soon as I get up. I have been using the restroom around 3-5 times a day. Normal for me is once a day. The consistency of the stools vary from loose to semi and I can see undigested food in it.
The doctor that I saw suggested that I take a immodium once a day but even that did not slow my bowels down. I have been on some herbal medicines which somebody suggested for the past 2 weeks to avail. I have been on the most restrictive diet for the past couple of weeks andI am eating just rice, boiled vegetables and some yoghurt and that has not made a difference as well. I am trying to get an appointment with another doctor today.

I am dreading the call from my manager asking me to hit the road again. I would really appreciate it if somebody with a similar experience could share their thoughts with me.
Eagerly awaiting a reply.
Cheers,
Sunil

Rob
Veteran

Posts: 148
Registered: Mar 99

posted 03-18-1999 01:44 PM     Click Here to See the Profile for Rob     Edit/Delete Message   Reply w/Quote
Hi Sunil.
Have you had all the tests done? (upper GI, lower GI, sigmoidoscopy, colonscopy, etc?) I ask b/c I know it took several months of testing before my doctor diagnosed me with IBS - and it seems like you have only been suffering for a few months.
Anyway, my case is not as severe as yours, but I have found this board very helpful - I'm sure you will get tons of great advise. I've recently started using the calcuim for my D -- its only been a week, but I haven't had D since starting using it. Others seem to have good results with that.
Read the other postings here - they are very helpful.
R

Sunil
Newbie

Posts: 6
Registered: Mar 99

posted 03-18-1999 02:11 PM     Click Here to See the Profile for Sunil   Click Here to Email Sunil     Edit/Delete Message   Reply w/Quote
Thanks for your reply Rob. I have had similar attacks twice in my life before and they just dissappeared without me doing anything. The tests which I did at that time were normal as well.
The doctor that I am seeing now asked me to take blood tests, stool tests and a xray of the bowel. ( I forget the medical term of this test but it is where they ask you to drink this white chalky liquid and take xrays of it's passage through your bowels). After they all turned up normal and based on my symptoms the doctor said that I had IBS and that I could do the colonscopy but he was positive that it was a waste of time and that it would be normal as well. He suggested Dicetil which I took for around 10 days and it did not do any good either.
Sunil

Ty
Veteran

Posts: 288
Registered: Mar 99

posted 03-18-1999 02:27 PM     Click Here to See the Profile for Ty   Click Here to Email Ty     Edit/Delete Message   Reply w/Quote
Your symptoms sound EXACTLY like mine! We're the same age and were even diagosed at the same time. Strange, no?

I agree with Rob. Get all the tests you can. It's better to rule out something very serious. IBS is not a picnic, but it can be "lived with".

Here's how I've been able to cope:

Caltrate 600 Plus - works very well with those of us with IBS-D. I also take Levsin before I eat and that really helps my stomach to handle foods. I now have six small meals a day. What, when and how much I eat are how I am able to "survive". But it's still trial and error as far as what I can eat. I too lost a lot of weight before being diagnosed - not eating was the only way I could go to work and function the whole day.

Stress can also be a huge contributing factor. Sounds like your job is high stress. Some people do have to get different jobs or even change careers. It might be something to look into - or find someway of reducing the stress if you can't change jobs.

Hope this helps.

Ty

JillAnn
Veteran

Posts: 304
Registered: Dec 98

posted 03-18-1999 02:28 PM     Click Here to See the Profile for JillAnn   Click Here to Email JillAnn     Edit/Delete Message   Reply w/Quote
Sunil,

Don't think that I'm a wierdo... but is there any possibility that you have giardia? It is an intestinal parasite and the only way they can diagnose it by doing a stool sample test of some kind. Ever those aren't too reliable I've heard. The way people get it is from drinking untreated water, like river water, but it also can live on vegetables and fruits (I belive. That's what my Dr. said at least) To treat it you take a round of really heavy duty antibiotics, called Flagil (sp?)

The only reason I know all this is my husband got it after rafting in Colorado. He became violently ill and lost 15lbs almost immediately, but it doesn't always act like that in everyone.. it can just hang around and make you miserable.

Has anyone at least mentioned this to you??? It may be worth asking your doctor. Other than that.. you're in the right place for advice and support, I wish we all had a quick cure... but unfortunately we don't.

Good luck and let us know how you are!
Jill

Renee
Newbie

Posts: 6
Registered: Jan 99

posted 03-18-1999 03:46 PM     Click Here to See the Profile for Renee     Edit/Delete Message   Reply w/Quote
Same here, Sunill, same age, diagnosed about 8 months ago. I tried the Caltrate with immediate results, but then was lucky enough to find my "problem" - CAFFEINE. I still have minor pains at night, but the D is basically gone. I went from full-time to part-time to help with the stress, too. So far, everything is looking a lot better, and I am working with a nutritionist for a caffeine-free diet. Everyone is different, so hang in there. Definitely try the Caltrate and Immodium. Good Luck!

Sunil
Newbie

Posts: 6
Registered: Mar 99

posted 03-18-1999 05:15 PM     Click Here to See the Profile for Sunil   Click Here to Email Sunil     Edit/Delete Message   Reply w/Quote
Thanks Ty, Jill and Renee.
I found this site this morning and I have already found out more out IBS than I have in 3 months from my doctor and reading books.

Jill, I shall speak to my doctor about the possibility of giardia! Thanks for the tip.

I went to the store to buy Caltrate a littel while ago. I am in Toronto , Canada and I hope it is the same Caltrate that you guys are talking about. There were 2 kinds. The caltrate 600(high potency calcium supplement)and caltrate 600 plus Vitamin D. I bought the former. It does not say anything about controlling D. It sounds like Tums. Also, could you please tell me when I should take this ie. before meals or after.
Take care.
Sunil

Ty
Veteran

Posts: 288
Registered: Mar 99

posted 03-18-1999 05:44 PM     Click Here to See the Profile for Ty   Click Here to Email Ty     Edit/Delete Message   Reply w/Quote
Most people take the Caltrate with meals, but be careful - calcium suppresses the aborption of iron. So what I do is take it with some crakers or toast in between meals.

Ty

Rob
Veteran

Posts: 148
Registered: Mar 99

posted 03-18-1999 05:52 PM     Click Here to See the Profile for Rob     Edit/Delete Message   Reply w/Quote
I take it first thing in the morning before I get in the shower - which is about 45 minutes before breakfast. Most pills/medications, etc. give me nausea, but I haven't had a problem taking the calcium w/o food. But, Ty is right to watch out for the aborption of iron

Pattee
Veteran

Posts: 300
Registered: Jan 99

posted 03-18-1999 06:37 PM     Click Here to See the Profile for Pattee   Click Here to Email Pattee     Edit/Delete Message   Reply w/Quote
sunil.Coming from ahigh stress retail background I know only too well what you are going thru.you have come to the right place so many of my anxieties have been helped by coming here.There is so much support,humor and good information here.It may take a bit to find the right combination to help you get your confidence back.Ive never had too many regrets in my life but I wish I had had this back in 78 when I first was diagnosed with IBS.My good days out weigh the bad ones lately.The enormous relief of finding this Place has been undescribable.Keep coming back and read all the posts.God bless us all.Love Pattee

BobJ
Veteran

Posts: 366
Registered: Jul 98

posted 03-18-1999 07:46 PM     Click Here to See the Profile for BobJ   Click Here to Email BobJ     Edit/Delete Message   Reply w/Quote
Sunil

Not that I'm an "old timer" or "veteran", but I've been coping with this curse for about a year now and am in similar circumstances as yours relative to travel and stress (not age, I'm 52).

Here's what I do to cope with the travel as best I can:

1. I eat very light throughout the day preceding the travel, and also while I'm at my destination and traveling back home. This generally helps me reduce the symptoms while I'm strapped into my seat on the runway, and through the rest of the travel day (flight time, rental car driving etc.)

2. I have discovered some prescription meds which help me - Donnatal and Lomotil. You will find something (NOT NECESSARILY THESE SAME DRUGS) eventually.

3. This Caltrate stuff also helps reduce symptoms for many, myself included.

4. When traveling, I wear DIAPERS (Yes, you can get used to them). They "work" in the sense that 1)it's protection against soiling outer garments, 2)it does give you a little "psychological" edge to know that you are "protected, and 3) if you do suffer an unexpected accident, the clean-up is a lot easier. And, it doesn't really "show through", so don't worry about the appearance perspective.

I have toned down my travel over the past year, and yes, that makes for more job stress when your boss wants you to travel more. So, tell him(her) about your problem (in general, not detail) and that you're working on solving it. This will generally get you 6 or so extra months of "understanding", and the time to try some management methods.

Finally, there may come a time when you just decide that traveling, even when you are able to manage your symptoms, is just too much of a hassle - I am at that point now. I will be changing jobs sometime in the next 6 months or so for that reason (and, the company I'm with just got bought out - guess that's a factor too, huh?). When you come to that point and make that decision, you will feel a little of the burden lifted.

Good luck...BJ

Judy
Veteran

Posts: 203
Registered: Dec 98

posted 03-19-1999 09:14 AM     Click Here to See the Profile for Judy   Click Here to Email Judy     Edit/Delete Message   Reply w/Quote
Don't be afraid to take the Immodium at least until you come up with something better or have more tests done to rule out other things. I have had the same tests as you, had this seven months and am still like I was in the beginning..continious loose bowels..varying degrees of looseness. The Immodium has been the only thing I've tried other thancalcium etc. That didn't work for me. Calcium is a constipating thing that's why it works for IBS-D people. You can safely tke the IMmodium four times a day., I alternate 2 one day and three the next. It too will constipate if you use too much. you just have to learn to regulate it to suit you. The stress and anxiety of this alone will get you down..try to cut back on the stress in your life if possible. you owe it to yourself to tke care of your body..it's the only one you get and it starts wearing down with age. We all thin everything we do is absolutely necessary but if we get really sick somethings got to go so why not before?
Good Luck

All times are ET (US)

next newest topic | next oldest topic

Administrative Options: Close Topic | Archive/Move | Delete Topic
Post New Topic  Post A Reply
Hop to:

Contact Us | Parkview Publishing Home Page

Parkview Publishing

Powered by Infopop www.infopop.com © 2000
Ultimate Bulletin Board 5.45c

IBS & the Mind-Body/Brain-Gut Connection, by William B. Salt II, MD