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Linny
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posted 02-01-1999 12:02 PM     Click Here to See the Profile for Linny   Click Here to Email Linny     Edit/Delete Message   Reply w/Quote
Hello everyone. My battle with IBS has been going on for about one year now. I have tried everything I have heard or read about for IBS relief.

Here's what I've tried: elavil (50 mg and 25 mg nightly), zoloft (100mg), mellaril (80 mg or as needed for pain), calcium (1200 mg daily), charcoal tabelts (for gas), Phazyme (for gas), paxil (caused a very strange reaction), lobelia extract, peppermint capsules, biofeedback, weekly massages, acupuncture, guided imagery, chiropractic care, seeing a GI, a GI motility specialist, an anesthesiologist, etc.....

I have eliminated the greatest stressors inmy life. I am 17 years old and I was editor-in-chief of my high school's newspaper (a lot of stress..) I am now doing homeschooling because the pain, diarrhea,and vomiting have pretty much debilitated me.

I exercise several times a week. I walk 10 or more miles a week, a do strength training, and I do yoga. I do relaxation techniques several times throughout the day. I do deep abdominal breathing that I learned from biofeedback. Some of this has helped somewhat, but I am still unable to eat most things and I am always in a great deal of pain.

Here's my diet...bananas, plain toast, plain rice or noodles, plain oatmeal, and other extremely bland foods.

I am lactos intolerant, and I am not sensitive to small amounts of sugar and gluten.

Can anyone suggest anything. A friend of my father's who teaches metaphysics wants to try ot help me. Does anyone know anything about metaphysics?

I am so sick of this (literally) and I don't know what I'd do if I am unable to graduate in June and go to college in the fall. I do not spend a lot of time dwelling on this, but this is a problems I have to deal with because I will hopefully be getting acceptances soon and I will have to reply.

Can anyone offer any suggestions?

Thanks
L

Blair
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Posts: 99
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posted 02-01-1999 12:27 PM     Click Here to See the Profile for Blair   Click Here to Email Blair     Edit/Delete Message   Reply w/Quote
I don't know if this will help but I CANNOT eat oatmeal. This took me a long time to figure out. Try white rice instead. Good luck.

Janice
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Posts: 62
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posted 02-01-1999 12:42 PM     Click Here to See the Profile for Janice   Click Here to Email Janice     Edit/Delete Message   Reply w/Quote
Oh goSh, l7 with ibs--THAT'S HORRIBLE! I've had this really bad only one year and it has been a trial.
There's a few other meds--- Librax may help, as well as Effexor, and Questran. These are all prescription medications. Also have you tried Lomotil?
I was amazed that someone put you on Mellaril!! Have you seen a ggastroenterologist? if not, see one please-- you need tests to rule out any other cause.
Be in touch with us again--we care!

------------------

JANICE

"Do not go gentle into that good night"

silver
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posted 02-01-1999 04:21 PM     Click Here to See the Profile for silver   Click Here to Email silver     Edit/Delete Message   Reply w/Quote
Linny, ask your doctor for modulon for the gas. I find it constipating too so it might help you.

silver
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posted 02-01-1999 05:05 PM     Click Here to See the Profile for silver   Click Here to Email silver     Edit/Delete Message   Reply w/Quote
Hi again, I have been thinking about your diet for quite some time now. Please dont take this the wrong way but I think you are not eating enough fiber foods. The white rice, toast and noodles are all white flour products, known to cause rocks in your intestines. As a result the water just pass around it causing D and extreme gas. You should try other fiber foods to increase the bulk to form softer stools that will absorb some of the water to stop the D. Try some sweet potatoes, regular potatoes in the skin, spaghetti squash instead of reg.spaghetti, its quite delicious. You dont have to make it spicy, use chicken instead. Also try brown rice with cooked veges in it and a little soya sauce. If you like kidney beans, use them on green salad, they ad fiber and protein. I hope your not mad at me for criticizing your diet but I think its too limited. This might not help overnight but give it a week or two, you never know, it might help. Again, please dont take this the wrong way, I'm only trying to help you find other food that might be good for you. I know I get sick of the same stuff.

belfor
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Posts: 196
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posted 02-02-1999 07:18 PM     Click Here to See the Profile for belfor     Edit/Delete Message   Reply w/Quote
Linny: It looks like you may have to change your diet drastically because it is so important that you have more fiber in your diet. Some of the board members take fiber con I take metamucil cookies with lots of water. I think you need to eat some vegetables, carots,celery, parsley,parsnip,etc. (you can puree them in a blender, after cooking them) and drink them as a juice like substance, it is a little thick but delicious)or eat it with a spoon. Make sure to reheat it, these vegetables help to regulate body functions like proper elimination and make your blood alkaline. I eat steamed mung bean sprouts and romaine lettuce. These are low in carbs and have lots of water in them, which also is an aid in elimination. Feel better! belle :

Sykes
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Posts: 7
Registered: Jan 99

posted 02-02-1999 07:42 PM     Click Here to See the Profile for Sykes   Click Here to Email Sykes     Edit/Delete Message   Reply w/Quote
Hi Linny,
If theres one thing I've learned in
having had IBS, it's that different things
work for different people. For me it was
All-Bran cereal. Started with 1/3 cup getting up to a cup ( more or less) Drink lots of water afterwards. I drink 2 12 oz. glasses.
The bran does take 4-6 weeks to work in a positive way. my doc. told me to stick to it,
even tho I'd feel worse for a while. It was very successful. Good Luck!

Blair
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Posts: 99
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posted 02-02-1999 07:58 PM     Click Here to See the Profile for Blair   Click Here to Email Blair     Edit/Delete Message   Reply w/Quote
The other posters are right to have you try fiber. I've tried different types of instant fiber (metimucil,fibercon), don't work for me. I guess you're already eating white rice which I eat alot of. I've introduced black beans into my diet and have had no trouble with them. Soak them first in water overnight before cooking. I think beans are fiber. Somwhere I read on one of these posts about Jerusalum Articoke flour. Haven't tried that yet. Good luck. Maybe you can become a doctor and find the cure for IBS.

hope
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Posts: 9
Registered: Jan 99

posted 02-02-1999 09:09 PM     Click Here to See the Profile for hope   Click Here to Email hope     Edit/Delete Message   Reply w/Quote
Hi Linny!

I'm not too much older than you, so I know how especially rough it can be. We're used to being SOOOO active, and then all of a sudden we're living in fear of an attack. Keep your spirits up, because I've noticed that worrying about it tends to bring on the symptoms too!

I have to agree with the others about the fiber intake. However, I'm walking a fine line with that. My dietician said that if I can get close to 25 - 35 mg of fiber (it can be either soluble or insoluble) that will add bulk to my stool. The downside is that sometimes too much fiber will make your stomach "mad". Increase it slowly, and you should be okay.

Try to drink at LEAST ten 8-oz glasses of water a day. That helps the fiber (which is adding bulk to your stool) to move through your system.

You may want to look into taking any "peel" fruits out of your diet for a bit. The bananas, oranges, grapefruits, etc. tend to upset the stomach too.

I've learned a great deal from my dietician. She is helping me to not be dependent on meds in order to control the IBS. Usually, I only have to turn to them when the pain gets bad (which only seems to occur when I eat something I shouldn't have, or when I'm stressed....usually about exams and deadlines).

PLEASE email me if you need anything! Good luck!


Christine

nikib
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posted 02-02-1999 10:03 PM     Click Here to See the Profile for nikib   Click Here to Email nikib     Edit/Delete Message   Reply w/Quote
Hi Lindsey,
I agree with the fiber too, but be careful. People react differently to different foods. It may take some experimenting to get it right. For example, I love all kinds of beans (kidney, green, etc.), but I can't eat them. I can eat garbanzo beans though and found a couple of neat recipes with them.

At first, your body may get a little gassy. Start fibering your body up slowly.

I hope you feel better!

Niki

Linny
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posted 02-03-1999 11:59 AM     Click Here to See the Profile for Linny   Click Here to Email Linny     Edit/Delete Message   Reply w/Quote
I will give the fiber another try, but I have added it slowly in the past and it has made my diarrhea and abdominal pain worse. I hae also tried the metamucil, fibercon, and citrucil and I had the same result. I am seriuosly considering meeting with a dietician to figure something out. The other problem with the diet is that I throw up anything that is not extremely bland. Thanks for your replies.
Lindsey

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