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heykate
Veteran

Posts: 556
Registered: Jan 99

posted 01-21-1999 07:57 PM     Click Here to See the Profile for heykate   Click Here to Email heykate     Edit/Delete Message   Reply w/Quote
I am one of the lucky IBS sufferers whose primary illness is fibromyalgia. I KNOW what you all go through because I have mild to medium IBS and have suffered pretty much everything you all describe. But on top of that, I suffer chronic fatigue, joint tenderness, occasional double vision, memory loss and other weird stuff just to make it all more interesting. Parkview is trying to start a noteboard for us fibro sufferers. If you know anyone who has fibro, please refer them to the site. Don't worry, as a sufferer of both, I'll be both places! Thanks!

Lisa D
Newbie

Posts: 7
Registered: Jan 99

posted 01-21-1999 09:41 PM     Click Here to See the Profile for Lisa D     Edit/Delete Message   Reply w/Quote
Hi, I have a question, I just joined the BB and I don't know what fibromyalgia is. Can anyone give me the scoop? (in English please) I also have blurred vision, memory loss and seem to be tired a lot. (I am sure I am tired because I don't eat so I don't have the energy I used to)

heykate
Veteran

Posts: 556
Registered: Jan 99

posted 01-22-1999 08:20 AM     Click Here to See the Profile for heykate   Click Here to Email heykate     Edit/Delete Message   Reply w/Quote
Hi Lisa D,
The first thing you need to do is see a good doctor. Fibromyalgia is diagnosed pretty much by process of elimination. They will test you for lupus, thyroid, gall bladder, lung x-rays, upper and lower bariums (if you have the IBS with it)and many other things. As they all come back perfectly normal (and you sink deeper into a hypochondriacal depression) you will hopefully have a doctor who is up-to-date on fibro info and will be able to diagnose you.

The symptoms vary from person to person. It seems to primarily affect women in their child-bearing years, but can affect anyone who has been in a bad accident, had surgery, or gone through some other sort of trauma. However, none of this is hard and fast, and anyone can have it. Most common symptoms are pain in what they call pressure points - upper back, lower back, abdomen, neck (there are charts available - suggest you get on a good search engine and look up fibromyalgia - there's tons of info out there), chronic fatigue, memory lapses, joint pain, and depression. There seems to be a link between IBS and fibro (from the info I've read). In other words, it is not uncommon for fibro sufferers to also have IBS (not sure about the other way around).

What I wanted to say in my original posting and didn't was that they are now linking chronic fatigue syndrome to fibromyalgia. They used to think they were separate illnesses, but there is thought now that they are linked. I've noticed a lot of people discussing their fatigue here. It wouldn't hurt to look into it.

Anyway, Lisa D, hope this helps. E-mail me if you have any other questions.

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IBS & the Mind-Body/Brain-Gut Connection, by William B. Salt II, MD