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Author Topic:   Fibromyalgia connection
heykate
Veteran

Posts: 556
Registered: Jan 99

posted 01-15-1999 09:32 AM     Click Here to See the Profile for heykate   Click Here to Email heykate     Edit/Delete Message Reply w/Quote
I am fairly new to this wonderful forum for IBS sufferers, but I have a question for all of you. I was diagnosed with IBS about 25 years ago. The pain stepped up after the birth of my son, along with sleeplessness, anxiety and bouts of extreme fatigue. I was honestly afraid I was dying. After five years (no kidding) of bouncing from doctor to doctor, having every test imaginable, being accused of everything from hypochondria to various personality disorders, I finally was diagnosed (about three years ago) with fibromyalgia. It changed my life! Finally, I knew I wasn't losing my mind and I actually had something "real" wrong with me. Through careful diet, exercise and stress reduction therapies, along with intense chiropractic sessions, I am managing this combination of illnesses for the first time in many years. I am learning what the "triggers" are and that IBS is usually associated with fibromyalgia. The combination of IBS and fibromyalgia is truly miserable and can be incapacitating. After reading the many postings in this forum, I am wondering if there are others with undiagnosed fibromyalgia. Have any of you been diagnosed with it?

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Duane
Veteran

Posts: 50
Registered: Jan 99

posted 01-15-1999 09:28 PM     Click Here to See the Profile for Duane     Edit/Delete Message Reply w/Quote
heykate!

I've looked into fibro. I (think) it's 20-30% of IBS people also have the fibro bene too.

According to current criteria, I don't think that I have it, but somedays feel I'm 85% of the way there.

I also concur with your CFS symptoms too.

The American Arthritis Foundation claims fibro as one of their diseases, so that might be a real good source of information.

An alternative site that I really liked, was Jim Roache's Fibromyalgia Page.

http://www.echelon.ca/jfroache/fms2.html

I found it to be a refreshing change from most of the info that I came across.


------------------
Regards - Duane
ps - I'm not a Doctor and don't play one on TV either...


[This message has been edited by Duane (edited 01-15-99).]

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sass
Veteran

Posts: 296
Registered: Aug 98

posted 01-16-1999 09:54 PM     Click Here to See the Profile for sass   Click Here to Email sass     Edit/Delete Message Reply w/Quote
heyKate,
Your story sounds SO MUCH like my own I feel I could have written your post myself. I went through exactly the same thing!
The peaces of my puzzle all came together one year ago & like you I now feel that after four years of hell I FINALLy have my life back. All due to the fact that I can now lable my problems & have learned how to manage them. It was like being in prison & finally being set free!!
I also agree with you that the combination can be very debilitating. I have two small childeren & when the fibro flares up it is sometimes all I can do to make it through until it passes again. For me it is much harder to deal with than the IBS.
Good to know there is some one who knows just how I feel!
If you ever want to e-mail me to compare notes & share helpul hints...PLEASE DO
sass

IP:

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IBS & the Mind-Body/Brain-Gut Connection, by William B. Salt II, MD